I’ve been searching for an effective way to let my teen know understand my MS. I told her about what it does to the body, how it makes me tired and how it effects my body. It was clear that she didn’t understand because her eyes glazed over half-way through my multiple attempts to explain what’s changed about me. Of course, I also am still discovering what has changed as well, as you know. When I posted my last blog to Facebook, a friend of mine asked me if I knew about “The Spoon Theory.” He told me that he’d tell me about it when he saw me.
Patience isn’t my strong suit, so I hit up Google and found Christine Miserandino, a writer, blogger, speaker and an active lupus patient advocate. Her “Spoon Theory” is about communicating chronic illness to others. You can either read it on her blog, or you can watch the video. Honestly, she’s such a character, I was very glad when I found the video posted below. Now she has Lupus, which is different. But because there are many symptoms that are shared with MS, it was one of the possibilities that had to be eliminated in order to give me my diagnosis. But for those who have trouble getting people to understand how it feels to have a chronic illness such as Fibromyalgia, Lupus, MS, and Rheumatoid Arthritis, this might help.
